the ethics of biomedical big data

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The Ethics Of Biomedical Big Data

Author : Brent Daniel Mittelstadt
ISBN : 9783319335254
Genre : Philosophy
File Size : 29. 24 MB
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This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The book advances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward.

The Ethics Of Biomedical Big Data

Author : Brent Daniel Mittelstadt
ISBN : 3319335235
Genre : Philosophy
File Size : 77. 94 MB
Format : PDF, Mobi
Download : 317
Read : 324

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This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The book advances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward.

Ethical Reasoning In Big Data

Author : Jeff Collmann
ISBN : 9783319284224
Genre : Computers
File Size : 82. 17 MB
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This book springs from a multidisciplinary, multi-organizational, and multi-sector conversation about the privacy and ethical implications of research in human affairs using big data. The need to cultivate and enlist the public’s trust in the abilities of particular scientists and scientific institutions constitutes one of this book’s major themes. The advent of the Internet, the mass digitization of research information, and social media brought about, among many other things, the ability to harvest – sometimes implicitly – a wealth of human genomic, biological, behavioral, economic, political, and social data for the purposes of scientific research as well as commerce, government affairs, and social interaction. What type of ethical dilemmas did such changes generate? How should scientists collect, manipulate, and disseminate this information? The effects of this revolution and its ethical implications are wide-ranging. This book includes the opinions of myriad investigators, practitioners, and stakeholders in big data on human beings who also routinely reflect on the privacy and ethical issues of this phenomenon. Dedicated to the practice of ethical reasoning and reflection in action, the book offers a range of observations, lessons learned, reasoning tools, and suggestions for institutional practice to promote responsible big data research on human affairs. It caters to a broad audience of educators, researchers, and practitioners. Educators can use the volume in courses related to big data handling and processing. Researchers can use it for designing new methods of collecting, processing, and disseminating big data, whether in raw form or as analysis results. Lastly, practitioners can use it to steer future tools or procedures for handling big data. As this topic represents an area of great interest that still remains largely undeveloped, this book is sure to attract significant interest by filling an obvious gap in currently available literature.

The Data Revolution

Author : Rob Kitchin
ISBN : 9781473908253
Genre : Social Science
File Size : 81. 46 MB
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"Carefully distinguishing between big data and open data, and exploring various data infrastructures, Kitchin vividly illustrates how the data landscape is rapidly changing and calls for a revolution in how we think about data." - Evelyn Ruppert, Goldsmiths, University of London "Deconstructs the hype around the ‘data revolution’ to carefully guide us through the histories and the futures of ‘big data.’ The book skilfully engages with debates from across the humanities, social sciences, and sciences in order to produce a critical account of how data are enmeshed into enormous social, economic, and political changes that are taking place." - Mark Graham, University of Oxford Traditionally, data has been a scarce commodity which, given its value, has been either jealously guarded or expensively traded. In recent years, technological developments and political lobbying have turned this position on its head. Data now flow as a deep and wide torrent, are low in cost and supported by robust infrastructures, and are increasingly open and accessible. A data revolution is underway, one that is already reshaping how knowledge is produced, business conducted, and governance enacted, as well as raising many questions concerning surveillance, privacy, security, profiling, social sorting, and intellectual property rights. In contrast to the hype and hubris of much media and business coverage, The Data Revolution provides a synoptic and critical analysis of the emerging data landscape. Accessible in style, the book provides: A synoptic overview of big data, open data and data infrastructures An introduction to thinking conceptually about data, data infrastructures, data analytics and data markets Acritical discussion of the technical shortcomings and the social, political and ethical consequences of the data revolution An analysis of the implications of the data revolution to academic, business and government practices

Beyond Humanity

Author : Allen E. Buchanan
ISBN : 9780199587810
Genre : Medical
File Size : 48. 86 MB
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Biotechnologies already on the horizon will enable us to be smarter, have better memories, be stronger and quicker, live longer, be more resistant to diseases, and enjoy richer emotional lives. Allen Buchanan explores urgent ethical issues raised by these developments, about what it is to be human and what sort of society we should strive to have.

Big Data And Learning Analytics In Higher Education

Author : Ben Kei Daniel
ISBN : 9783319065205
Genre : Education
File Size : 29. 71 MB
Format : PDF
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​This book focuses on the uses of big data in the context of higher education. The book describes a wide range of administrative and operational data gathering processes aimed at assessing institutional performance and progress in order to predict future performance, and identifies potential issues related to academic programming, research, teaching and learning​. Big data refers to data which is fundamentally too big and complex and moves too fast for the processing capacity of conventional database systems. The value of big data is the ability to identify useful data and turn it into useable information by identifying patterns and deviations from patterns​.

Progress And Challenges In Precision Medicine

Author : Mukesh Verma
ISBN : 9780128095027
Genre : Medical
File Size : 90. 51 MB
Format : PDF, ePub
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Progress and Challenges in Precision Medicine presents an insightful overview to the myriad factors of personalized and precision medicine. The availability of the human genome, large amounts of data on individual genetic variations, environmental interactions, influence of lifestyle, and cutting-edge tools and technologies for big-data analysis have led to the age of personalized and precision medicine. Bringing together a global range of experts on precision medicine, this book collects previously scattered information into one concise volume which covers the most important developments so far in precision medicine and also suggests the most likely avenues for future development. The book includes clinical information, informatics, public policy implications, and information on case studies. It is a useful reference and background work for students, researchers, and clinicians working in the biomedical and medical fields, as well as policymakers in the health sciences. Provides an overview of the growing field of precision medicine Contains chapters from geographically diverse experts in their field Explores important aspects of precision medicine, including applications, ethics, and development

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