the connected self the ethics and governance of the genetic individual

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The Connected Self

Author : Heather Widdows
ISBN : 9781139619424
Genre : Law
File Size : 23. 52 MB
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Currently, the ethics infrastructure – from medical and scientific training to the scrutiny of ethics committees – focuses on trying to reform informed consent to do a job which it is simply not capable of doing. Consent, or choice, is not an effective ethical tool in public ethics and is particularly problematic in the governance of genetics. Heather Widdows suggests using alternative and additional ethical tools and argues that if individuals are to flourish it is necessary to recognise and respect communal and public goods as well as individual goods. To do this she suggests a two-step process – the 'ethical toolbox'. First the harms and goods of the particular situation are assessed and then appropriate practices are put in place to protect goods and prevent harms. This debate speaks to core concerns of contemporary public ethics and suggests a means to identify and prioritise public and common goods.

The Routledge Handbook Of Global Ethics

Author : Darrel Moellendorf
ISBN : 1844656373
Genre : Philosophy
File Size : 58. 40 MB
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Global ethics focuses on the most pressing contemporary ethical issues - poverty, global trade, terrorism, torture, pollution, climate change and the management of scarce recourses. It draws on moral and political philosophy, political and social science, empirical research, and real-world policy and activism. The Routledge Handbook of Global Ethics is an outstanding reference source to the key topics, problems and debates in this exciting subject, presenting an authoritative overview of the most significant issues and ideas in global ethics. The 31 chapters by a team of international contributors are structured into six key parts: normative theory conflict and violence poverty and development economic justice bioethics and health justice environment and climate ethics. Covering the theoretical and practical aspects of global ethics as well as policy, The Routledge Handbook of Philosophy of Global Ethics provides a benchmark for the study of global ethics to date, as well as outlining future developments. It will prove an invaluable reference for policy-makers, and is essential reading for students and researchers in philosophy, international relations, political science, environmental and development studies and human rights law.

The Moral Social And Commercial Imperatives Of Genetic Testing And Screening

Author : Michela Betta
ISBN : 1402046189
Genre : Law
File Size : 44. 20 MB
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This is a dynamic book that successfully combines global and local thinking with regard to an emerging technology that will contribute to the expansion of proteomics and pharmacogenomics, the science of tailored healthcare and treatments. Genetic testing and screening will change the way people understand health, diagnostic knowledge, illness but also crime, databases and private information, paternity, and self-knowledge. In addition to giving individuals the opportunity to think differently about their well-being, it installs a new taxonomy in terms of illness, because its probabilistic effects will introduce a new narrative in the health discourse of 21st century society. While in the past people could be classified as being healthy or sick, now, through genetic testing and screening, adults can be classified as being healthy, predisposed to an illness, probably at risk, at risk, or carriers of certain risks. The effects of this taxonomy do not remain confined to the individual who is tested but extends to an entire family, as genetic knowledge is family knowledge. But the technology of genetic testing and screening installs a second dramatic register in the prenatal phase when cells and embryos are tested and subsequently altered in order to hit targets of perfection. However, this technology can also be seen as a strategy for the acquisition of new knowledge about oneself, as it instigates a different attitude towards ourselves in a scenario in which the notion of life as a singular noun is seriously questioned by cultural practices that make it necessary to speak of forms of life. The complexity of the Self resulting from this epistemological shift evoke the ancient Greco-roman practices of the care of the self leading to self-knowledge. Genetic testing and screening could therefore be understood as a form of self-quest, and attempt to discover what we are beyond our wishes and desires - beyond what we would like to be.

Self Transformations

Author : Cressida J. Heyes
ISBN : 019804240X
Genre : Social Science
File Size : 71. 94 MB
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Heyes' monograph in feminist philosophy is on the connection between the idea of "normalization"--which per Foucault is a mode or force of control that homogenizes a population--and the gendered body. Drawing on Foucault and Wittgenstein, she argues that the predominant picture of the self--a picture that presupposes an "inner" core of the self that is expressed, accurately or not, by the outer body--obscures the connection between contemporary discourses and practices of self-transformation and the forces of normalization. In other words, pictures of the self can hold us captive when they are being read from the outer self--the body--rather than the inner self, and we can express our inner self by working on our outer body to conform. Articulating this idea with a mix of the theoretical and the practical, she looks at case studies involving transgender people, weight-loss dieting, and cosmetic surgery. Her concluding chapters look at the difficult issue of how to distinguish non-normalizing practices of the self from normalizing ones, and makes suggestions about how feminists might conceive of subjects as embodied and enmeshed in power relations yet also capable of self-transformation. The subject of normalization and its relationship to sex/gender is a major one in feminist theory; Heyes' book is unique in her masterful use of Foucault; its clarity, and its sophisticated mix of the theoretical and the anecdotal. It will appeal to feminist philosophers and theorists.

Dissertation Abstracts International

Author :
ISBN : STANFORD:36105022256148
Genre : Humanities
File Size : 24. 69 MB
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Beyond The Hipaa Privacy Rule

Author : Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule
ISBN : 9780309124997
Genre : Computers
File Size : 29. 83 MB
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In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

Life And Ethics In Japan

Author : Norihiko Aoki
ISBN : IND:30000126709009
Genre : Medical
File Size : 82. 35 MB
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