suffering the silence chronic lyme disease in an age of denial

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Suffering The Silence

Author : Allie Cashel
ISBN : 9781583949252
Genre : Medical
File Size : 48. 14 MB
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Allie Cashel has suffered from chronic Lyme disease for sixteen years—but much of the medical community refuses to recognize her symptoms as the result of infectious disease. In Suffering the Silence: Chronic Lyme Disease in an Age of Denial, Cashel paints a living portrait of what is often called post-treatment Lyme syndrome, featuring the stories of chronic Lyme patients from around the world and their struggle for recognition and treatment. In the United States alone, at least 300,000 people are diagnosed with Lyme disease each year, and it is estimated that 20 percent of them go on to develop chronic symptoms of the disease, including (but not limited to) muscle and joint pain; digestive problems; extreme fatigue, confusion, and dizziness; sensations of burning and numbness; and immune-system dysfunction. Before reaching a final diagnosis, many of these patients are misdiagnosed with diseases and conditions like lupus, multiple sclerosis, fibromyalgia, chronic fatigue syndrome, depression, anxiety, and even dementia. Despite these numbers and routine misdiagnoses, The Centers for Disease Control and Prevention (CDC) and Infectious Diseases Society of America (IDSA) claim it is impossible for the Lyme bacteria to survive in the body after standard antibiotic therapy. For these chronic patients who have their suffering routinely dismissed by doctors—and even family and friends—the social effects of the illness can be as crippling as the disease itself. Suffering the Silence is a personal and provocative call to break the stigma and ignorance that currently surrounds chronic Lyme disease and other misunderstood chronic illnesses—but it is also a message of hope and comfort for Lyme sufferers, encouraging them to share their stories, seek out treatment, and remember that they are not alone. From the Trade Paperback edition.

Suffering The Silence

Author : Alice Cashel
ISBN : 1583949240
Genre : Biography & Autobiography
File Size : 51. 65 MB
Format : PDF
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Allie Cashel has suffered from chronic Lyme disease for sixteen years--but the medical community refuses to recognize her symptoms as the result of infectious disease. In "Suffering the Silence: Chronic Lyme Disease in an Age of Denial," Cashel paints a living portrait of post-treatment Lyme disease syndrome, featuring the stories of chronic Lyme patients from around the world and their struggle for recognition and treatment. In the United States alone, 300,000 people are diagnosed with Lyme disease each year, and it is estimated that 20% of them go on to develop chronic symptoms of the disease, including muscle and joint pain; digestive problems; extreme fatigue, confusion, and dizziness; sensations of burning and numbness; and immune-system dysfunction. Despite these numbers, the Centers for Disease Control and Prevention (CDC) and Infectious Diseases Society of America (IDSA) claim it is impossible for the Lyme bacteria to survive in the body after standard antibiotic therapy. For these chronic patients who have their suffering routinely dismissed by doctors--and even family and friends--the social effects of the illness can be as crippling as the disease itself. "Suffering the Silence" is a personal and provocative call to break the stigma and ignorance that currently surrounds chronic Lyme disease and other misunderstood chronic illnesses--but it is also a message of hope and comfort for Lyme sufferers, encouraging them to share their stories, seek out treatment, and remember that they are not alone.

Lyme Loonies

Author : David Skidmore
ISBN : 9781634179867
Genre : Humor
File Size : 36. 65 MB
Format : PDF, Kindle
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Life is either a comedy or tragedy. Lyme Loonies is a little bit of both. In the first cartoon book about Lyme disease, creator David Skidmore captures and illuminates the struggles faced by those with Lyme. The cartoons are a way of expressing hope, humor and revolt at the tug-of-war in which the Lyme community find themselves regarding diagnosis, treatment, education, funding, prevention, public apathy and a cure. Lyme Loonies is a book created in solidarity with those familiar with Lyme disease. You will laugh and maybe even cry, definitely shake your head then most likely smile. Your palm also might hit your face a little too hard a couple times, but a sense of relief will follow knowing that you are not alone. It is a book to share with family, friends and those who are unaware of Lyme, because education and awareness will bring the change we all want, need and deserve. If laughter really is the best medicine, then a daily dose of Lyme Loonies is just what you need.

Bite Me

Author : Ally Hilfiger
ISBN : 9781455567072
Genre : Biography & Autobiography
File Size : 34. 10 MB
Format : PDF, Mobi
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Ally was at a breaking point when she woke up in a psych ward at the age of eighteen. She couldn't put a sentence together, let alone take a shower, eat a meal, or pick up a phone. What had gone wrong? In recent years, she had produced a feature film, a popular reality show for a major network, and had acted in an off-Broadway play. But now, Ally was pushed to a psychotic break after struggling since she was seven years old with physical symptoms that no doctor could explain; everything from joint pain, to night sweats, memory loss, nausea, and brain fog. A doctor in the psych ward was finally able to give her the answers her and her family had desperately been searching for, and the diagnosis that all the previous doctors had missed. She learned that she had Lyme disease-and finally had a breakthrough. What she didn't know was that this diagnosis would lead her down some of the most excruciating years of her life before beginning her journey to recovery from eleven years of misdiagnosis and physical pain. She would need to find her courage to heal physically, mentally, and emotionally, and become the survivor she is today. Set against the backdrop of the fast-paced fashion and entertainment industries, BITE ME shares the heartbreaking and hilarious stories that moved Ally forward on her journey from sickness to health. Its themes will be familiar to more than 300,000 Americans diagnosed with Lyme disease each year, many of whom, like Ally, wondered for years what was wrong with them. BITE ME offers readers hope and ideas for how one can transition from victim to survivor, and shares the spiritual principles and actions that have contributed to her wholeness as a human, mother, and international spokesperson against Lyme disease.

Autoimmune Illness And Lyme Disease Recovery Guide

Author : Katina Makris
ISBN : 9781632207579
Genre : Health & Fitness
File Size : 51. 62 MB
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Plague

Author : Kent Heckenlively
ISBN : 9781628739299
Genre : Science
File Size : 77. 8 MB
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On July 22, 2009, a special meeting was held with twenty-four leading scientists at the National Institutes of Health to discuss early findings that a newly discovered retrovirus was linked to chronic fatigue syndrome (CFS), prostate cancer, lymphoma, and eventually neurodevelopmental disorders in children. When Dr. Judy Mikovits finished her presentation the room was silent for a moment, then one of the scientists said, “Oh my God!” The resulting investigation would be like no other in science. For Dr. Mikovits, a twenty-year veteran of the National Cancer Institute, this was the midpoint of a five-year journey that would start with the founding of the Whittemore-Peterson Institute for Neuro-Immune Disease at the University of Nevada, Reno, and end with her as a witness for the federal government against her former employer, Harvey Whittemore, for illegal campaign contributions to Senate Majority Leader Harry Reid. On this journey Dr. Mikovits would face the scientific prejudices against CFS, wander into the minefield that is autism, and through it all struggle to maintain her faith in God and the profession to which she had dedicated her life. This is a story for anybody interested in the peril and promise of science at the very highest levels in our country.

Lyme Rage

Author : Mindy Haber
ISBN : 1936940914
Genre : Biography & Autobiography
File Size : 23. 64 MB
Format : PDF, ePub, Docs
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According to the National Institute of Health, Lyme disease, a bacterial infection that is spread through the bite of one of several types of ticks, may now be a virulent epidemic in the U.S. producing as many as 300,000 to one million new cases per year. Yet since it was first discovered in 1982 its diagnosis and treatment has remained wrapped in controversy. "Lyme Rage" is the true story of one family's experience with the disease. Their harrowing journey begins when nine-year old Sophie develops symptoms that their family doctor cannot explain. When her symptoms worsen, and doctor after doctor refuses to treat her for a lack of diagnosis, her family is at a loss for what to do. The final disaster comes when Sophie collapses and is unable to walk. It is only when the family begins traveling a road without established medical markers that the seemingly miraculous happens and the family finds a doctor who is willing to treat Sophie that her rocky road to recovery can begin. Mindy Haber LCSW, CASAC is a licensed psychotherapist in private practice in the Hudson Valley where she lives with her family. Mindy offers information about her experiences with Lyme disease through her website www.lymeragebook.com.

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